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Website by Eberhard Wenzel is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
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VL.GIF WWW VL Public Health : Selected Topics HUMAN GENOME PROJECT

Topic's Information Site Compass Reference Note

 

^ Topic's Information

 


Screw us once, shame on you. Screw us twice, shame on us!
Jessica Zafra, 1995 (journalist from the Philippines)


 

  • Australian GeneEthics Network - a network of people and organizations being critical with what the Human Genome Project is all about

  • Center for Bioethics: Ethics & Genetics. A Global Conversation - a forum to discuss social and ethical implications of the Human Genome Project, based at the University of Pennsylvania (USA)

  • Council for Responsible Genetics - a non-profit organization based in the USA

  • Eubios Ethics Institute - a nonprofit group that aims to stimulate the international discussion of ethical issues, and how we may use technology in ways consistent with "good life"; (eu-bios). It aims at an integrated and cross-cultural approach to bioethics, and at building up an international network

  • Eugenics Archive - "invite you to experience the unfiltered story of American eugenics primarily through materials from the Eugenics Record Office at Cold Spring Harbor, which was the center of American eugenics research from 1910-1940. In the Archive you will see numerous reports, articles, charts, and pedigrees that were considered scientific "facts" in their day. It is important to remind yourself that the vast majority of eugenics work has been completely discredited. In the final analysis, the eugenic description of human life reflected political and social prejudices, rather than scientific facts"

  • Gene Letter - a newsletter on scientific and societal issues in genetics published by the Shriver Center (USA) and funded by the US Department of Energy

  • Genetics and Ethics - compiled by Bryn Williams-Jones, the best resource covering every aspect regarding the relations of genetics and ethics

  • Genetics Forum - "the only independent organisation in the UK concerned with the use of new genetic technologies and their public policy implications. It was founded in 1989 by a group of scientists, lawyers and advocates from the animal welfare, environmental and consumer movements concerned about the long-term impact of rapid developments in the genetic sciences"

  • Greenpeace on Genetic Engineering

  • Humane Genome Organization (HUGO) - an international organization of researchers of the Human Genome Project

  • Indigenous Peoples Coalition Against Biopiracy - "committed to protect indigenous peoples biological resources from exploitation. The IPBC is a project of the Enowkin Centre in Penticton, British Columbia, with a field office and staff located on the Pyramid Lake Reservation in Nixon, Nevada. Coalition members include several Indigenous peoples organizations from throughout the Americas. The IPBC also maintains a listserv to share current information with Coalition members"

  • International Association of Bioethics - a very low-profile, if not disappointing page of an organization the President of which is Peter Singer

  • International Center for Genetic Engineering and Biotechnology (ICGEB) - ICGEB is an international organization established to promote the safe use of biotechnology world-wide and with special regard to the needs of the developing world. ICGEB aims to be a research and training Centre of Excellence for its Member States, helping developing nations to help themselves and holding out the prospect of advancing knowledge and applying the latest biotechnological techniques in public health, nutrition, agriculture, industrial production of high added-value commodities, environmental protection/remediation and energy saving.

  • Issues and Ethics - provided by Genentech Inc., provides some good resources

  • Johns Hopkins University Center for Civilian Biodefense Studies - "helping avert bioterrorism and its devastating effects. Our goal is to educate our colleagues, public leaders, and the traditional response community in the medical and public health aspects of a bioattack. It provides up-to-date information on the biological agents of greatest concern and explores ways to prevent, and respond to their use on civilians. In addition, this site serves as an expanding repository for relevant news, conferences, background reading, and other bioterrorism-related resources"

  • UNESCO, International Bioethics Committee

  • US National Human Genome Research Institute (NHGRI) - the leading and coordinating body of the Human Genome Project

  • US Department of Energy: Human Genome Program - this site provides an overview of the Human Genome Project and its vast implications for agriculture, medicine, etc.; why the Human Genome Project was initially linked to the Department of Energy is a question which keeps me busy as I can't find an answer. (EW)


If you find a broken link or wish to suggest a new resource, please use this form.
Thanks for your kind support - LDB.

 


 

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Hospital Management <- HUMAN GENOME PROJECT -> Human rights
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